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WICHITA, Kan. (KAKE) - Rowdy Ray Campbell is a five year old, currently undergoing treatment for a rare type of leukemia.
"He's a great kid really, he's really a sweet boy. He gets a little rowdy sometimes, but that's his name," said Johnny Duncan, Rowdy's father.
After showing symptoms for just three months, a diagnosis of ALL B type leukemia with CNS-3s was concluded. His mother, Sallie Winegarner, tells us she knew Rowdy was really ill when he started slowing down on the t-ball field.
"That's kind of how we figured out he had something wrong with him because he would run all the time, then he just started walking fast in his t-ball game," said Winegarner. "And I was like, 'what are you doing? Can you not run?' And he was like ‘I cannot run.’”
This type of cancer is extremely rare.
"To have the ALL B type leukemia and CNS3s only 100 kids a year get it in the United States, only 2300 kids worldwide so it's already a unique situation," explained Duncan.
In fact, it is so rare that Rowdy's parents say doctors at Wesley tell them they have never seen this specific kind of cancer. The hospital is involving a cross-country research team to formulate Rowdy's treatment plan.
"They have to put the chemo through his spine and so I'm sure that's not comfortable," said Winegarner.
Rowdy is currently on a regime of four different chemo treatments, but there is some good news.
"We just found out Monday night that he doesn't need a bone marrow transplant, so that's a good thing," said Duncan. "So we might be through the worst part but we've still got a long way to go."
Rowdy has been in the hospital for over a month and his treatment is set to continue for two years at least. There is a GoFundMe for Rowdy’s medical expenses, feel free to donate to this link.
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July 13, 2023 at 05:55AM
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Local 5-year-old diagnosed with rare type of cancer - KAKE
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